What type of registry is CBTRUS?

The Central Brain Tumor Registry of the United States (CBTRUS) is classified as a special purpose registry. This category of registry is dedicated to collecting, analyzing, and disseminating data on specific conditions, in this case, brain tumors. Special purpose registries focus on detailed information about particular diseases or conditions, facilitating research and improving treatment outcomes.

CBTRUS targets brain tumors to collect epidemiological data and statistics that can help inform healthcare providers, researchers, and policymakers. By focusing exclusively on brain tumors, this registry plays a crucial role in understanding trends, survival rates, and treatment efficacy, which directly aids in advancing knowledge in the field of neuro-oncology.

In contrast, general health registries encompass a broader array of health data, national health surveys gather information on health behaviors and outcomes across various demographics, and private patient registries typically focus on data specific to a practice or organization without the comprehensive scope of a special purpose registry like CBTRUS.